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June 3, 2025
AI Emotion Analytics reveals hidden patient needs by analyzing emotional cues within personal networks—offering deeper insights into rare disease journeys.
Personal Network Analytics is the most systematic way to understand the connections we have with the people around us. These connections are a vital aspect of identity and human experience. It supports:
Is there a way to go deeper? Using AI, perhaps?
Personal Network Analytics has enhanced the understanding of the life experiences of patients with rare diseases. Could adding AI deepen empathy even more, and if so, how?
AI is ubiquitous, so where should we start? With literature reviews? Automated transcriptions? Transcript summaries?
We opted to test AI Emotion Recognition to determine if it could identify how people with rare diseases felt towards their network connections. If this combination succeeded, we’d have new insights to inform R&D, healthcare professional (HCP) education, patient support programs, advocacy, and market access for all companies, not just those pursuing therapies for rare diseases.
This case study describes the Personal Network and AI Emotion Analytics of a nearly 40-year-old woman, who was diagnosed with a rare disease as a teenager, and has been diagnosed with additional rare diseases since. She is married with several children and is a stay-at-home mom, not by choice, but due to her disease conditions. One, a condition that causes her constant pain, has yet to be diagnosed and cannot be treated.
Partly to find support for her journey, she turned to social media, created a patient community, and became an influencer. Her plans for the future include expanding that effort. She admires other patients who visit Congressional Offices and aspires to become an advocate on Capitol Hill.
We focused only on her first-degree connections, which total 152, which is smaller than average for two reasons. First, her family rents a home, so it requires fewer connections to maintain or improve it. Second, her conditions limit her ability to engage socially. Her only personal social engagements are daily phone calls with friends from childhood who live in a distant state.
As the mother of three children, responsible for ensuring their safety and well-being, she has second-degree connections (e.g., teachers, doctors, dentists, and parents of her children’s friends). Her children play seasonal team sports, where she connects with coaches and other parents. We estimate that her second-degree connections number 600. Whether first- or second-degree connections, each one has the potential to involve positive or negative emotions.
Glenna recorded her standard interview to collect first-degree connection data, developed the network map, and used it to structure a recorded debriefing session to gather the patient’s reactions.
Sidi analyzed the recordings using Voice Emotion Recognition, an AI-based tool that identifies a speaker’s emotions through the tone and pitch of their voice, working equally well across languages, accents, and demographics. The feelings it detects can be subconscious and are not dependent on the words people use. This highly robust tool predates Generative AI by over a decade, boasting accuracy rates of 85% to 90%.
We use a color-coding system in which vibrant green is the most positive emotion and vibrant red is the most negative. Other, less vibrant or yellow colors indicate where the emotion could be found along that spectrum. Network connections with no color indicate insufficient data to indicate an emotional valence.
Her most positive emotions include:
Also positive, though less so, are:
She finds several connections challenging to manage:
Her emotions become somewhat negative when discussing:
Her most negative emotions include:
Did AI Emotion Analytics enhance Personal Network Analytics? We agree that it did.
Personal Network Analytics identified a variety of unmet practical needs. AI Emotion Analytics added nuances that an interviewer alone did not detect, specifically related to:
What types of patients or conditions might benefit most? Any that:
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Disclaimer
The views, opinions, data, and methodologies expressed above are those of the contributor(s) and do not necessarily reflect or represent the official policies, positions, or beliefs of Greenbook.
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Pam Cusick
July 18, 2025
Such interesting work! Love the intersection of AI and networks to help improve the patient/caregiver experience!