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Rare Patient Voice

Rare Patient Voice provides panels of patients and family caregivers with rare and non-rare diseases for research studies of all kinds.

Data Collection

Panels / Communities

Recruiting

Featured in 2025 Buyer's Guide for Sampling Solutions

Last updated on July 21st, 2025

Features and attributes

Chatbots for recruitment

Intercept sampling

Marketplace / Programmatic

Panel / Panel management

Proprietary incentive programs

Qualitative recruitment

Research communities

Respondent experience tools

Sample blend & targeting by AI

Social networks

Synthetic sampling

Target feasibility estimates

What is Rare Patient Voice?

Rare Patient Voice, LLC connects patients and family caregivers with the companies and researchers who need their opinions and experiences. We connect clients with hard-to-recruit respondents through our panel of over 145,000 patients and caregivers, whom we meet at in person awareness events and through patient advocacy groups. Our community members are authentic and look forward to research opportunities through RPV, for which they are compensated. We recruit for qual and quant within 2 weeks. We don’t conduct the research, we find the respondents. Our panel includes patients and family caregivers in the US, Canada, UK, France, Germany, Italy, Spain, Australia, and New Zealand. Visit www.rarepatientvoice.com for a list of panels, counts, pricing and PAM, our 24/7 DIY proposal tool.

Reviews

5

Based on 1 ratings

5.0

RPV is fantastic. Their attention to detail is superb. They are working very diligently and intelligently to help us find the optimum recruits. And their communication is the best.

Susie R

President, Market Research, 2 - 4

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Recognition

SBE Certified

Services and Expertise

Explore market research solutions, industries, markets, and business issues covered by Rare Patient Voice

Published on Greenbook

2 results

When Caring Is Personal: Insights from Rare Disease Caregivers
Healthcare Insights Edge

When Caring Is Personal: Insights from Rare Disease Caregivers

Gain insights into challenges faced by caregivers of rare disease patients. Explore emotional, financial, and personal impacts of this life-changing j...

Wes Michael

Wes Michael

President at Rare Patient Voice

Paying Your Bills
Insights Industry News

Paying Your Bills

Wes Michael sparks discussion about the difficulties of maintaining healthy cash flow and handling late payments.

Wes Michael

Wes Michael

President at Rare Patient Voice

INFO

711 Hampton Ln

Towson, MD,
United States

21286

Metro: Baltimore (MD)

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Insights Association (United States)

Intellus (International)

EphMRA (International)

Wes Michael

President

(410) 218-0527